Wednesday, 13 August 2014

Houston, we have a sheep!

Recently our SLP has been working on animal sounds like frog, cow, sheep, cat - stuff like that. She is using a mixture of Castillo Morales (more or less a special massage of the oral muscles) and TAKTKIN (which derives from the American PROMPT therapy and helps the patient by simulating how certain sounds are being made) in order to help his mouth form different sounds. I was going to link the two therapy methods but I could only find German links, sorry for that. 

She has already been able to make him do the frog sound (QUAK) some sessions ago with the help of her hands. And he was the happiest frog ever heard! It brings him so much joy! Today when we walked down the stairs to her office he tried to do the frog by himself and then laughed.

 Today they worked on the sheep. Sunny tried really hard and both of us showed him how he had to form his mouth. She used her hands helping him to adjust his mouth and lips while I slowly made the sound and showed him my mouth movements. He did pretty well and we were quite content. When the session was finished the SLP and I talked about various stuff while I packed up our belongings when all of a sudden we heard a loud MMMÄÄÄÄÄHHHHHH! Our heads flung around and we saw Sunny, his face beaming with happiness and pride!! We could clearly see that he was so very happy that he had managed to make the sound correctly - and all by himself! We cheered and applauded him, I cuddled and kissed him and he jumped up and down from excitement.

When we returned home Sunny proudly and happily demonstrated his dad the sheep sound several times. And he even managed to do it correctly two or three times.

It is such a big deal for me and I am really happy how well he did! We will be practicing the sheep a lot in the future!! Yaaaaay!

Gentleman of the year

Just a short post today. This is one of my favourite songs right now because it makes me happy.

And, let's be honest, I am sure everyone of us would just love to dance in public without even caring for a second what it looks like! ;-) Just feel the beat, let the music warm your soul and oblige to whatever your feet, legs, and arms tell you to do!

Enjoy! :-)

Monday, 11 August 2014

A detour

This post was planned to go live last week. I had already written most of it on Monday and decided to finish and publish it on Tuesday evening. 

Then we took another detour. I would love to say it was unusual but it was not since Sunny had another concussion last week and we stayed another two days at the hospital. It was the second concussion this year and the fourth in his life. The last one was at the end of May this year. It is funny how the nurses all know us and greet us almost excitedly when we walk in. Can I just say that I am sooo fed up with all of this hospital stuff??

Here is the short version: I was about to make Sunny ready for bed and decided to open the windows in this room in order to ventilate it before he would be going to sleep. I turned my back to him for all of about three seconds when I heard a loud noise followed by immediate crying. As I turned around I saw him lying next to his changing table with his face on the wooden floor. I am not exactly sure what happened but I guess he tried to climb up the changing table and crashed while trying.

So I scooped him up, turned him around and saw blood in his mouth. He had hurt the inside of his cheek and was bleeding. And he was crying. Since his pain tolerance level is rather high I always know that it really hurts when he cries. The right side of his face was red and already turning a bit blue so the impact must have been quite strong. I consoled him but he was back to his quirky self soon and seemed normal at first.

After some time I put him to bed and snuggled up to him when he suddenly started yawning. However, he was yawning every ten seconds and I think about ten times in a row. That was when it dawned on me that he probably had another concussion. I am a concussion expert now with four of them so I know the signs. I went downstairs with Sunny to tell my husband about the accident and that I was presuming he had a concussion. I told him that I was thinking about going to the hospital.

Sunny, however, seemed quite normal again at that moment and had stopped yawning while I was carrying him so we decided to wait a while and see how it all develops. When we returned to his room he did not want to lie down anymore but instead sit on my lap and snuggle close to my chest. I presume he was already feeling sick by then.

When he fell asleep sitting on my lap (Sunny NEVER sleeps outside of his bed!) and even seemed to become unconscious at some point everything was crystal clear so I called my husband to take care of him while I packed our hospital bag. While I was packing Sunny threw up all over my husband so I hurried as much as I could and took him to the hospital. It was after 23:00 when we could finally move into our room and crash in our beds. We were both exhausted.

So, that was that. Bummer.

And this is the post I had prepared to publish earlier last week. I just posted it some minutes ago where it belongs, date-wise.

Tuesday, 5 August 2014

Farewell, dear first grade and dear class! :-(

Last Wednesday was Sunny's final day of school before the summer holidays.

It was a sad week because we had to say good-bye to Sunny's class and almost all his fellow students. One of them is moving up to a new class (he is a lot older than the rest of the kids and will be in middle school from now on). One of them will be leaving the school in order to attend an inclusive classroom in another town and facility.

Sunny's most important friend will be leaving his complete home life and environment behind to live in an orphanage/children's home and this fact is breaking my heart so much. What is even worse is that the children's home is roughly two hours away so we will not even be able to visit or meet him somehow by chance. Sunny's teacher could not go into detail about the reasons but she mentioned that the social surroundings and situations of the child were very difficult and that he will be staying in the home for a longer period of time. When she told me about it she had tears in her eyes and I know how hard it is for her, too. She is such a loving and caring person, I can totally see why it hurts her as much as it hurts me (or probably much more, given that she saw this boy every day). She pledged for a home in the same town that Sunny's school is in but the parents and the youth welfare service mutually decided for the other home.

So there are only Sunny and another boy left of the initial class and with no new students to enter elementary school this year Sunny and the other child are going to be divided to the other two classes left in elementary school.

Sunny's aide will also be leaving which is another hard blow that we have to stand. Sunny and him shared such a strong bond, words were unnecessary between them. They were very, very close and did so much together. On Mondays the class was usually taught in the woods and outside and Sunny and his aide loved to saw, hammer, and drill wood and make crafts. His aide was tireless when it came to working with Sunny and I guess he enjoyed it as much as Sunny did. I know he will be greatly missed by my son.

I am very grateful that he will keep his loving teacher for most of the days in the new class though. She will be in another class for two mornings a week but otherwise will be in Sunny's class together with another teacher. I thank the heavens for that! It is the only good thing about all the changes coming in the next school year.

The new class will have seven instead of five students and I wonder if or how this will affect Sunny's attention span and capability to learn. I hope it will not affect him in a negative way.

So last week on Monday we had a final farewell barbecue and spent some time together for the last time. The parents were invited, too, so it was a bittersweet experience and I shed quite some tears as you can imagine if you have been following this blog for some time.

I just hope that we will be able to keep in touch with the boy that left for the inclusive classroom since Sunny likes him a lot, too. 

I am a bit worried about how Sunny will be able to cope with all of these changes. I hope he will be as happy in his new class as he used to be. He loves to go to school so much, it would be such a shame if that changed. Just imagining it makes my heart heavy.

For now, however, we will try to enjoy the summer holidays that lie ahead of us and I will try not to be consumed by negative thoughts about the coming school year. I will cross that bridge when I get to it.